The Florida Society of Plastic Surgeons

Cleft Lip & Palate Repair
in Florida

Cleft lip and cleft palate is amongst the most common of all birth anomalies, occurring with a frequency of approximately 1 in every 1000 births. In the state of Florida each year, this translates to roughly 100 to 200 new cases of cleft lip and/or palate. Both genetic and environmental factors may contribute to the formation of a cleft during development. With improvements in technology over the decades, it is now commonplace for clefts involving the lip to be detected before birth, typically on screening 20-week ultrasounds during pregnancy. Florida has 10 approved centers for the comprehensive care of children with cleft lip and palate, as designated by the American Cleft Palate-Craniofacial Association.

cleft lip model smiling

Jordan P. Steinberg, MD, PhD, FACS, FAAP

What is cleft lip and cleft palate?

A cleft of the lip forms very early during fetal development when the embryologic segments of the lip fail to properly fuse together, leaving an opening that disrupts the landmarks of the lip. This may be incomplete or complete. In complete cases, the cleft extends up into the floor of the nose on the affected side. Cleft palate also occurs early in fetal development, and is marked by the absence of fusion of the bony shelves of the palate, leaving an opening in the roof of the mouth. This can also be complete, involving the majority of the tissue from the back of the palate to the front part just behind the gum ridges, or incomplete, which can involve the soft palate only or the soft palate plus a portion of the hard palate. Clefts come in variable sizes and extents, and tend to appear differently from one child to the next. Some clefts are complete through the palate, gums, and one side of the lip (“complete unilateral cleft lip and palate”). Others may involve both sides of the lip, separating the lip and palate into two side portions and a middle portion that is detached from the sides (“complete bilateral cleft lip and palate”).

What is the role of the plastic surgeon in cleft lip and palate care?

Plastic surgeons are central members of the care team for cleft lip and palate. Cleft lips are typically repaired by plastic surgeons with a specialization in this area (Pediatric/Craniofacial Plastic Surgeons) in early infancy (e.g., 3-6 months old). Cleft palates are repaired later in infancy, after some time for growth of the infant but before the first spoken words are starting to emerge (e.g., 10-14 months old). Plastic surgeons are also participants in multi-disciplinary care teams, which allow patients to be evaluated by multiple specialists in a single setting. Multi-disciplinary team follow-up continues through childhood, with attention to dental development, speech progress, and psychosocial well being of the child.

We are expecting, or have just given birth to, an infant with cleft lip and/or palate. What should we do next?

Parents expecting a child with a cleft or parents of newborns with identified cleft lip and palate are advised to seek input from one of the ten American Cleft Palate-Craniofacial Association-approved teams in the state of Florida. Resources may also be sought through the Florida Cleft Palate-Craniofacial Association. Finally, Florida Society of Plastic Surgeons members with a specialization in the area of Pediatric/Craniofacial Plastic Surgery can be identified on our website.

What do I need to know for my first Cleft Team visit?

After the birth of a newborn with a cleft lip and/or cleft palate, the first visit can be arranged with a multi-disciplinary care team for a full evaluation. Much of the initial focus after birth is on efficient feeding of the infant. With a cleft palate, special bottles will be provided to help the infant create the appropriate suction pressure, which sometimes amounts to just a single extra valve insert placed inside the bottle. Plans for surgical repair of the cleft can also be outlined at this first visit.

How many surgeries will my child need?

As noted above, cleft lip and/or palate can differ significantly from one child to the next. While at least one surgical procedure is required for repair of a cleft lip and repair of a cleft palate, additional surgeries may be needed over time as the child continues to grow and develop. In approximately 20% of children with a cleft palate, even with successful surgical repair, a second surgical procedure may be needed to improve speech. If needed, this is often recommended after at least 3 years of age, once the child’s speech patterns become more evident and after a trained speech therapist has performed an evaluation. The decision to perform additional surgery for speech is made jointly with parents, speech therapists, and often others from the multi-disciplinary care team. In children with clefts that affect the lip and palate, or the lip and gum ridges, the cleft will also affect development of the permanent teeth as they begin to erupt in this area. As a result of this, surgery for “bone grafting” is also generally recommended in these instances. To ensure proper timing of this procedure, typically around age 7-10 years, children with cleft lip and/or palate are followed closely by dental professionals such as specialized pediatric dentists and orthodontists. Finally, additional surgeries may be recommended when children are completing their growth, such as septorhinoplasty surgery for improvement of nasal appearance or breathing, lip scar revision, or surgery on the jaws to correct an abnormal “underbite.”

Why choose an FSPS member plastic surgeon?

Pediatric/craniofacial plastic surgeons who also participate in FSPS are certified by the American Board of Plastic Surgery, have extensive experience with cleft lip and palate care, and have hospital privileges to ensure safe and responsible care for patients requiring surgery for these conditions.

What Should I Do Next?

Schedule a consultation with a Board-Certified FSPS member plastic surgeon.

×